Tuesday, June 19, 2012

Elizabeth’s Surgery

The week before we left for New York, Lizza had surgery on her ear. 

When she was born her right ear was almost completely folded over (it’s called a constricted ear deformity).  We were told there was nothing really we could do about it until she was 5 or 6, and then she could get surgery done to correct it. 

Daniel spent his first night home from the hospital researching it, and he found a company in England that sold little plastic forms that could be fitted inside the ear to help the cartilage harden in the right position.  We ordered some of those right away and then did our best to keep her ear taped up for the first 6 months of her life (after that she wouldn’t stop ripping the tape off, but also by then the cartilage wasn’t going to change much anyway). 

Keeping her ear taped up with the form inside helped a little bit (it was definitely better than when she was born), but it was still pretty noticeable (especially since she was bald for a long time).  2007-06 3092007-06 330

The funny thing is that she has never cared about her ear at all, which I think is a big blessing (also that she doesn’t have any hearing problems).  I thought that as she got older she would start to feel self-conscious about it, but she ended up having the perfect personality to deal with having a quirky little birth defect.  We had mentioned to her a few times that when she was 5 or 6 she would have surgery to help her ear, and as it got closer to her surgery date we talked to her about it a little more. 

A few months ago she was looking at pictures from when she was younger, and she came running to me shouting, “Mom, you will not believe this!  I was looking at pictures of me when I was a baby, and my ear is so weird!  It kind of looks like an elf ear!”  Then she stopped and looked in the mirror – I could tell she was studying her ear carefully – and she got a half surprised/half disgusted look on her face.  Then she said, “Mom! It might even look like a troll ear!”

I started laughing, but inside I was worried that she was going to be sad about her ear now (I was thinking, well at least now she’ll only have a few months of dealing with being self-conscious).  It didn’t even phase her, though – she left the room just as happy as she always is.  It was just like, “hmm, that’s kind of funny to have a troll ear.  Crazy.  I am so cute.  I think I’ll go hunt for bugs now.” 

Anyway, her surgery was scheduled for May 9th.  I took some “before” pictures that morning:

2012 05 09_19452012 05 09_19462012 05 09_1947

Here she is with some “happy surgery day” presents (I knew she was going to be nervous that morning, so I wanted to do something fun to distract her).  She also got some special drinks (she wasn’t allowed to eat anything that day, but she could drink clear liquids until 3 hours before the surgery). 

2012 05 09_1940

One of her special presents was a little diary book.  I thought it might be fun for her to write about her surgery.  I also thought she would just write in it that day, and then use the rest of it for coloring in, but she loved the idea of having a diary and she took it really seriously.  Since her surgery, she has written in it almost every day (and sometimes multiple times per day).  She always draws cute little pictures to go along with her entries. 

Here is her first entry: “Today is my surgery and I am kind of happy and nervous”

Then she drew a picture of her laying on a bed and a doctor about to cut her with some scissors.2012 06 19_3654

She also wrote about how Henry was a little jealous of the drink situation (he kept complaining about how it wasn’t fair that only Lizza got to have surgery):

“Henry wants to have a surgery because I get special juice.”2012 06 19_3655

Another one of her presents was a pack of gum, and she wrote about sharing it with the other kids:

“And when we are done I will share my treats with OTR”

(OTR = Oliver, Tristan, and Rachel.  I had told her I didn’t want Henry and Cindy to have gum)2012 06 19_3656

We dropped off Henry and Cynthia at a friend’s house (the older kids were at school), and then headed down to the surgery center in Austin.

There was lots of waiting:                                            2012 05 10_19502012 05 10_19562012 05 10_1955

She was allowed to bring one “cuddle item”, and she chose to bring along her faithful dog, Frenchy, who has been with her for many years.  2012 05 10_1954

The cutest surgery patient ever, all set in her gown and ready to be wheeled into the surgery room.  She was being such a good sport, but I could tell she was pretty nervous, because her little heart was beating super fast.  I distracted her by pointing out a tiny bug that was crawling along the top of her bed.  We decided it had come to visit her because it knew she loves bugs.

2012 05 10_1953

She wrote about it later in her diary:

“Oh, and at the surgery a bug landed on my bed and I am happy cause I love bugs.”  I love her picture – she’s holding Frenchy and you can see the little bug on her bed.

2012 06 19_3659

Daniel and I couldn’t be in the surgery room with her, so we waited anxiously in the waiting room.  About 2 hours later they wheeled her in to us.  The actual surgery only took about 1 1/2 hours, but it took her another half hour to fully wake up (although she was still pretty groggy).

We couldn’t see her ear yet, because she was all bandaged up, but the doctor told us it had gone really well:2012 05 09 Lizza

Here she is eating a popsicle, which she immediately threw up.  We had to stay in recovery for about an hour after that, because she was having a hard time holding anything down.  2012 05 10_1951

We finally were able to take her home.  She felt pretty sick at first, but about an hour after we got home she perked right up, and recovered really well after that. 

She was pretty pleased with the giant “get well” cookie my friend had made:

2012 05 09_1948

She made sure to document that in her diary:

2012 06 19_3660

She had to wear all of her bandages for four days.  She was a really good sport, even though it was itchy and annoying. 

Here is Daniel taking the bandages off.  Lizza was so nervous about this (so was I – after I took these pictures I had to leave the room).:

2012 05 13_24432012 05 13_24442012 05 13_2445

Cleaning her ear off.  Her hair was so matted to her head – I think she had been pretty sweaty with all those bandages on for so long.  I’m really glad Daniel is good at things like this – I was still too nervous to look at it.

2012 05 13_2446

I love this picture of them.  Daniel is smiling and telling her how great it looks, and she is still panicked that he took the bandages off.  I think she had mixed feelings about the whole thing, and was just feeling emotional.2012 05 13_2447

After a bath.                                                           2012 05 13_2448

It was still pretty bruised and swollen, but we were really happy with the results:2012 05 13_2449

She had her follow-up appointment with the doctor the next day.  After the bandages were taken off, our instructions were to have her wear a wide headband covering her ear for 6 weeks day and night, and then just at night for another month after that. 

She also was supposed to take it easy for the next few weeks, which was hard.

“And I am sad cause I cannot go outside or the pool or being wild

2012 06 19_3661

Now it has been almost 6 weeks, and we are getting excited because this week she gets to go back for another follow-up appointment, and hopefully she can take the headbands off during the day after that.

She really has been a good sport about wearing them, and she always reminds me to put one on quickly after she bathes at night.  I think she looks super cute in them.

2012 06 19_3662

Here is what her ear looks like today:

2012 06 19_36632012 06 19_36662012 06 19_3669

No more elves or trolls around here!

5 comments:

Diane said...

What a kid friendly surgery center - fluids til three hours before, a cuddly item, cute robes. Her white "hat" bandage looked pretty cool. And she probably doesn't realize how lucky she is that headbands are so popular right now. No one would dream it was for medicinal purposes.

I'm like you - taking bandages off and cleaning out that stuff is for Ray. Not me. He does stuff like that for the grandkids all the time.

beth said...

it looks great! i didn't even notice her ear before. i always get anxious even thinking about things like this (surgery, bandage removal, etc), so i understand you needing to leave after taking some pictures.

Gretchen said...

Joanne, I am so happy you posted this. I have wondered how she was doing. I cannot believe the results! It looks amazing. I am so happy it went so well. Love you guys!

Stacie Aho said...

Yay for Lizza! She is such a sport. Her drawings are so amazing. She looked great before, and she looks great now. :) So glad it all went well!

Eliza said...

Her ear looks great! How wonderful that she journaled it all. That will be fun for her to have. It's awesome that never for a moment did she have to feel self conscious about it.